General information

Question text: What is the study about? As part of our ongoing study of Americans’ health and financial situations, this research project would collect and analyze genetic data from saliva samples. We hope the genetic data, analyzed in combination with survey responses, will lead to greater understanding of the lives of Americans of all ages. Their physical, cognitive and mental health, socio-economic status, happiness, personality, behaviors, choices and their social, family, and work relations and environments.

This genetic data, called DNA, is passed down from your parents to you. It affects your physical characteristics, such as your height, health, and your risk for some diseases. Differences in our genetic code help explain why some people develop certain diseases and others do not, and may play a role in behavior.

From this, we hope to learn, for example, what environments and circumstances lower or increase the genetic risk of developing cognitive impairment and dementia. This knowledge can then be used to identify ways in which the well-being, health and aging of Americans can be improved.

Study Procedures: This study will be completely voluntary.
  • You will make the decision to participate or not after reviewing information about the study and getting all of your questions answered.
  • Participants will provide a saliva sample in a kit that we will send to your home.
  • We will extract DNA from the sample, create codes from the DNA, and use those codes as part of our analysis of UAS survey responses.
  • The saliva sample will be stored in a facility that meets all standards of the National Institutes of Health for data security.
  • No identifiers will be associated with the codes we extract to use for analysis.
  • Participants can withdraw their consent to participate at any time.

^FLgene001 Compensation:

From what you know now, how likely would you be to volunteer to participate in this study? No matter what you tell us now, you will have another chance to make the decision again if the study goes forward.
Answer type: Radio buttons
Answer options: 1 Definitely would participate
2 Probably would participate
3 Might participate, might not (50/50 chance)
4 Probably would not participate
5 Definitely would not participate
Label: hypothetical consent question for genomic study
Empty allowed: One-time warning
Error allowed: Not allowed
Multiple instances: No

Data information

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